Tuesday, January 28, 2014

One Year Ago Today: 01/28/2013 - Talkin' 'bout Discharge

(01/28/2013, Monday) Dialysis is life-saving. This is a mantra one must repeat when the patient has been dialyzed to the point of vomiting one too many times. Evie used to view it as an annoying or unpleasant stop in her day. All the other patients are 60 years or more her senior, but we still managed to do kid things there: homework, TV, games, books, etc. She now views it as a place of suffering. Dry weight 18.0 kg.

She slept upon her return--she did not get much food today, so it is certainly a good thing she has a feeding tube to provide her with nutrition, regardless of how scant it may be. Meanwhile, I met with the nurse practitioners in charge of orchestrating discharge while she slept. We discussed possible discharge time-frames, and I reiterated the list of things I believe must be dealt with prior to a successful discharge with no touch-backs (re-admissions).

DISCLAIMER: Posts Labeled "One Year Ago Today" are a record of what transpired when Evie first became ill.  The slightly edited text comes from emails which we sent to family to let them know what was happening, and to keep them updated.  These posts are usually long, but if you want to truly understand what life was like for us, and what led to this point, it makes for great "light" reading.

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