(01/06/2013, Sunday) At the hospital, Evie had a productive physical therapy
session, and a relatively quiet day. She didn't have a great sleep as
she has picked up a dry cough. So far it hasn't caused any detectable
change in her ability to breathe, but it has definitely caused her
angst. The rest of her day was pretty good, but her appetite sounds as
though it has tapered off.
Meanwhile, at home we have church at 1pm so it was mostly a lazy morning -- I was about to give myself a shave when I decided it was high-time to help Evie's little brother stop looking like a girl.
It was nice to go to church, although it felt odd not to have Heather or
Evie with us. Wrangling the little guy is particularly
difficult, especially with the afternoon church schedule.
I've decided that being at home makes our predicament a bit more real
than living at the hospital, as that seems more temporary somehow. That
probably doesn't really do a good job of explaining what I'm feeling,
but I don't quite know how else to put it into words.
DISCLAIMER: Posts
Labeled "One Year Ago Today" are a record of what transpired when Evie
first became ill. The slightly edited text comes from emails which we
sent to family to let them know what was happening, and to keep them
updated. These posts are usually long, but if you want to truly
understand what life was like for us, and what led to this point, it
makes for great "light" reading.
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