One Year Ago Today: 01/08/2013 - The Deal

(01/08/2013, Tuesday) Evie slept till 1000. They altered her schedule so that blood sugar checks occur before meals, bedtime, and 0200. They went to dialysis at 1530, where they removed another 1.5 liters of fluid. Crazy! They stopped her TPN (meal in a bag) Tuesday night. She slept well.

On the Homefront: We had planned to switch back again Tuesday, but I still had too many things on my punch list (due to my month long absence from home.) It was mostly stupid stuff, acquiring the right size of air filters for our heating system, troubleshooting what happened to our home computers (Computer A: Bad RAM; Computer B: Fried Motherboard), collecting a water sample to test for lead (in a new house, yeah, awesome), mediating between my insurance carrier and the ambulance billing service, another trip to the post office, etc.

Since I didn't make it back to the hospital as planned, I enlisted the girl's help--when they got home from school, we just worked on cleaning the house for Heather. I put away all the decorations and took down the Christmas lights. A friend from church brought us dinner, which should have made bedtime possible, Evie's older sister had 5 loose teeth which the dentist said all need to come out as soon as possible. The fee quoted by the dentist was exorbitant, so I made her a deal: If she could get the teeth out on her own by her birthday, we'd take a family trip to Great Wolf Lodge. (Cheaper than the dentist, and much more fun for the girls.) So we spent time expediting the most loose one. What may be ready for the dentist to pull takes a bit more preparation for the home remedy, in this case it took us about 3 hours of twisting and torquing, but we got one.

DISCLAIMER: Posts Labeled "One Year Ago Today" are a record of what transpired when Evie first became ill.  The slightly edited text comes from emails which we sent to family to let them know what was happening, and to keep them updated.  These posts are usually long, but if you want to truly understand what life was like for us, and what led to this point, it makes for great "light" reading.