One Year Ago Today: 01/27/2013 - Nearly speechless

(01/27/2013, Sunday)

On the Home-front -- More strep-throat, so no visitors, no relief, no reinforcements. Bummer.

Evie weighed 18.1 kilograms today, further illustrating how small her food/fluid intake was during the 48 hours since she was weighed last. She didn't talk much at all until it was time for sleep (not too uncommon, I've been told that a feeding tube makes speaking unpleasant.) I can summarize our nocturnal discussion in a sad sentence: She no longer views the hospital as a place of healing, but rather in her view it has become a place of torture which she cannot seem to escape. I continue to try to console her, but her perspective comes from sad experience, not a flair for the dramatic.

DISCLAIMER: Posts Labeled "One Year Ago Today" are a record of what transpired when Evie first became ill.  The slightly edited text comes from emails which we sent to family to let them know what was happening, and to keep them updated.  These posts are usually long, but if you want to truly understand what life was like for us, and what led to this point, it makes for great "light" reading.