(12/26/2012, Wednesday) Evie slept peacefully throughout the night. Today was a mixed bag.
The good:
- Dialysis managed to suck out 1.2 liters of fluid, a new record.
- Evie's lungs are improving well as confirmed via stethoscope and x-ray.
- Completed the course of several antibiotics, leaving only the
prescription of amoxicillin--necessary to deal with the increased risk
of meningitis due to the Lamborghini Juice (Soliris).
- She required only 1 unit of insulin all day today :-)
- Scheduled tomorrow for a Kidney Perfusion Test
which will give us a much better idea of the long-term utility of
Evie's kidneys. If they are going to bounce back, it should happen
within the next four weeks or so -- this test should give us an idea of
how much they may be able to bounce back.
The not so good:
- Evie lost as much as 400 ml of blood today via bloody stools. A
great deal of it was bright red and liquid -- thus we can scrap the
theory that it is old blood and that the bleeding has tapered off.
- She also vomited today, about a cup or so of what looked
primarily to be stomach acid. We can't blame this on the side-effects of
medication as we dropped several medications today and didn't add any.
It can't be blamed on a nosebleed as no blood was in it as she hasn't
had a nosebleed. Possible causes include her pancreas being upset about
the ridiculously small amount of liquid that is coming its way via
ice-chips and medicine taken orally. Option two is that she has been over-dialyzed.
We'd hoped to do an endoscopy tomorrow or the next day, but due to the increased blood, it may not be an option that soon.
DISCLAIMER: Posts
Labeled "One Year Ago Today" are a record of what transpired when Evie
first became ill. The slightly edited text comes from emails which we
sent to family to let them know what was happening, and to keep them
updated. These posts are usually long, but if you want to truly
understand what life was like for us, and what led to this point, it
makes for great "light" reading.
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