One Year Ago Today: 12/15/2012 - Feeling Lousy

(12/15/2012, Friday) As I'd guessed, today started off early with dialysis. Apparently, the nurses should have brought Evie breakfast early so she could eat first, but it didn't happen. She didn't get back to her room until about 1215. Unfortunately, she wasn't allowed to eat right away (even though her breakfast and lunch tray's were both waiting) because they wanted to check her blood sugar prior to eating. The extra delay was too much for my sweet 8 year old who was already not feeling well and was simply starving. Once they stopped sticking her she ate ravenously, but she started experiencing severe stomach pain.

And the day followed that trend from there. Although this was Evie's first opportunity to play with other kids and enjoy more of the hospital than just her room, she wasn't well enough to capitalize on it, and her only journey out of the room was for the morning dialysis treatment. By the time Evie's sisters and uncle came to visit, she was feeling lousy to the point that she really just didn't want to speak. She enjoyed seeing them, but it was beyond her tolerance level by the time they said goodbye.

Evie's Aunt & Uncle drove their entire family across the country from Arizona to be with Evie, and to help out at our house as the hospital is 1.5 hours from the house and Evie's mommy is finishing her first trimester of pregnancy (kid #5)

I'm hoping the stomach pains are an isolated incident--a temporary bump in the road, and that tomorrow will be much better. Her blood sugar/insulin issues are decreasing in frequency thanks to her shrinking steroid treatment, but the numbers still swing wildly. Gratefully tonight it is only in the 160's. If I can just get her to the point of only needing to deal with the kidney/dialysis issues that would be so good.

Please pray that Evie will be blessed with patience, faith, and fortitude as she is running a bit low -- this is all a lot for anyone to deal with, but it is particularly rough on my 8 year old.

DISCLAIMER: Posts Labeled "One Year Ago Today" are a record of what transpired when Evie first became ill.  The slightly edited text comes from emails which we sent to family to let them know what was happening, and to keep them updated.  These posts are usually long, but if you want to truly understand what life was like for us, and what led to this point, it makes for great "light" reading.